CMT Awareness Week

CMT Awareness Week is under full swing . . . and, in an effort to shed more positive light on those living with it and to educate those who are living without it, the CMTA asked for members to submit their photos and stories.  That's me in the middle.  And, a few of my friends have also shared their story, including Lenka, Milena and Michele!  You can also hear Michele's story that she shared with Lenka this week in celebration of CMT Awareness Week at Lenka's podcast.

Have you heard?

CMT Awareness Week will be September 19 -26 this year.  Amazingly, this week long event will actually coincide with the 1st anniversary of my own diagnosis of CMT.  It's hard to believe it has nearly been a full year since this life changing news was weighed on my shoulders (er, my feet I guess.)  So much has happened this year, while so much has stayed the same.  The best event, however, has truly been the upgrade and ultimately the eradication of pain in my left foot.

I will be celebrating by finalizing plans for the second surgery. . . Right now, plans are to go under the knife again on September 28 in the hopes that I will be walking again in time for Christmas . . .