Thursday, January 6, 2011

New Beginnings

The new year has brought with it a renewed focus on CMT and my overall health.   I was fortunate enough to finally find a neurologist who specializes in neuro-muscular diseases in December and he's been making it his priority to identify all my symptoms of CMT, to properly diagnose me, and to also find ways to hopefully identify and suspend the degeneration rate.

We've done tests, then we did some more tests, and in the coming weeks, we're going to do some more tests!  13 vials of blood, 3 MRIs, an EEG, and a reflex test have finally and positively confirmed that my neuropathy is directly related to CMT and that my overall health is quite good.  My muscles are strong, my degeneration rate seems to be slow, and the surgery has improved my overall flexibility and ease of movement!  I could not have asked for a more positive report just one year after receiving the shattering and alarming news of my diagnosis!

So, this new beginning continues with plans for a genetic test to identify my unique strain of CMT and reconstructive surgery for the right foot!  Frightened that I would get too comfortable with the luxury of self propulsion and postpone the surgery indefinitely, I hurried to schedule it before I even had the chance to second-guess my decision.

So, come February 15, 'the mad scientist' will finally have the chance to begin the final phase of his "Perfect Podiatric Pair" Project and to help me get one step closer to finding that perfect pair of pretty shoes. . .